Some of the most frequent questions I receive these days surround data interoperability and integrating multiple health IT systems. One of the biggest problems in connectivity is matching patient record data and ensuring that the same patient data in different systems is linked properly. Given how many times this topic comes up, I reached out to Cameron Thompson, Acxiom Healthcare Group Managing Director. Acxiom has an interesting method of patient data matching, called persistent links, and when I saw what they were doing for matching consumer records in non-healthcare settings (e.g. marketing) I thought some of you might want to learn about it. Here’s what Cameron had to say about the various techniques for matching patient data:

The promise of secure and seamless exchange of patient healthcare information is powerful. As payers, providers, Health Information Exchanges (HIXs) and Accountable Care Organizations (ACOs) move rapidly toward the full deployment of electronic medical records, healthcare IT professionals are grappling with a fragmented network of systems and data silos. These disparate systems and databases often house redundant copies of patient medical data in multiple formats, which limits the ability to see a true 360-degree view of the patient. The benefits from connected patient data are many, including:

  • Reductions in inaccurate coverage determinations.
  • Intelligent information sharing for clinical decision making.
  • Honoring patient consents and preferences consistently and accurately.
  • Minimizing risks of data breach with a unique health identifier that allows the transfer of patient information but NOT personally identifiable information such as name and address.
  • Reduction in time and effort in administrative processes including billing or claims inaccuracies.
  • Avoiding costly duplication or unnecessary testing.

To reduce these inefficiencies and solve the underlying problem, the new healthcare ecosystem needs an accurate means of identifying and matching patient record data to the correct individual across internal and external healthcare systems, including collaborative care delivery models.

Multiple systems across the healthcare enterprise produce duplicate patient records that are not easily recognizable as matches. Recognizing that Mary Jane Smith at 123 Elm Road in the 2009 clinical laboratory system is also Mary Collins of 78 Oak Street in the 2011 patient registration system is a challenge for any organization. Identifying a solid method for distinguishing patient information across multiple data systems and combining the data accurately will be pivotal to the effective adoption of Electronic Health Records (EHRs) and successful implementation of Health Information Exchange (HIE).

As organizations take on this challenge, several methods have been identified and considered to recognize an individual. Three leading methods can to be explored to achieve your business goals of continuity and cost reduction. These are:

1. Algorithm or String-Based Matching

An organization can develop an algorithm with string-based matching using identifiers in the existing data to uniquely identify individuals. The benefits of string-based matching include:

  • Recognizable practice – This is a well-known practice and resources capable of creating these programs are plentiful.
  • Options for processing – Algorithms can be created internally and run without sending data outside the organization or an external organization can be identified to conduct the match on the organization’s behalf.

Some of the challenges with this strategy include:

  • Inherent challenges in string-based matching – String-based matching relies on consistencies in reported names and addresses, which tend to change often.
  • Ensuring the accuracy of the data used in the algorithm – Manually entered names and addresses are often laden with inexactness. This makes string-based matching more difficult.
  • Absorbing the costs to develop and enable this identifier across systems – Costs would need to be incurred to develop, maintain and put the identifier into use across systems.

2. State-Issued Number

An organization can use another state-Issued number such as a state of issuance and birth certificate number. Benefits of this method include:

  • Development cost savings – using existing assigned identifiers would save costs on development of a new identifier.
  • Availability – an organization could select an identifier that is already available in many systems.

Some challenges with this strategy include:

  • Inconsistent data fields and record lengths – if state issued numbers are of different lengths this could create difficulty for the programmer creating the data field.
  • Protecting personal information from fraudsters – using a state-issued number could raise concern over identity theft with the proliferation of stolen Social Security numbers. Whether real or perceived, this information being made available opens the door for fraudsters to invade an individual’s privacy.

3. Persistent Links

Healthcare organizations should consider the use of highly accurate match technology that delivers knowledge-based persistent linking. This match technology delivers a set of persistent links a company uses to recognize their patients across a fragmented network of systems and data silos. Persistent Link match technology is regarded as the most precise match technology available to accurately resolve patient identity (such as AbiliTec, the linking technology offered by my company, Acxiom). The link provides a consistent, client-specific ID, across data variations, and it can be applied at all touch points and databases within an organization.

The use of persistent links, created from knowledge-based match technology, can provide:

  • More accurate patient recognition and identity resolution.
  • Greater control and governance around the patient data because each healthcare entity receives a dedicated set of encoded links, specific to their enterprise. This facilitates link transactions, minimizing the amount of personal identifiable information exchanged, aligning with the need for HIPAA compliance. Further, when multiple entities interact (e.g. an Accountable Care Organization between provider and payer) a unique link reconciliation can be processed by the provider in batch or real time.
  • A minimized amount of personal information that a healthcare entity needs to store as they use encoded links to integrate data and recognize patients.
  • Eliminate an upfront investment to develop and maintain identifiers. The first two options I mentioned – algorithms/string-based matching and state-issued numbers – require healthcare entities to develop and maintain the identifiers.
  • · Creation of a refresh cadence based on specific business needs, say monthly or quarterly, reducing non-matching exposure to the cadence latency.

There are also some challenges related to using persistent links:

  • Persistent link application and maintenance will be more costly and an organization needs to be willing to look at the investment in higher quality.
  • The healthcare organization needs to be willing and able to transmit records with personally identifiable information in a privacy compliant manner, such as encryption.

As healthcare organizations move forward by adopting technology to improve patient experience they will find that the accuracy of the data will drive their success. Organizations should consider each of these methods for recognizing patients, each have their benefits and select the method that best meets specific organizations needs.

The foundation of an effective provider and payer relationship depends on recognizing the patient throughout the continuum of patient care. If the healthcare community can provide accurate patient information, billions of dollars can be captured yearly and patient healthcare would become much more efficient, inevitably leading to improved outcomes.

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The Linux Foundation has invited me to speak about how to use Android in Medical Devices on Monday, February 14 at the Android Builders Summit. If you’ll be at the Summit or are in the San Francisco area and would like to meetup at or near the event, please reach out to me via speaking@shahidshah.com.

Here’s the abstract of my talk on Monday:

FDA regulated medical devices are considered safety-critical systems due to their ability to affect patient lives. Given the nature of scrutiny and the requirement to play it safe, most medical device vendors end up choosing proprietary or custom solutions for operating systems, databases, messaging platforms, alarm notification systems, and event logging. This talk will uncover some of the common misconceptions around government regulations and how there are not inherent limitations around using Android or FOSS in safety-critical systems so long as the requisite risk analysis and quality assurance work is conducted. Shahid will present his recent work on modern medical device architectures built on Android and the challenges and opportunities associated with using Android in medical devices. Questions such as these will be answered: Will the FDA accept open source in safety-critical systems? Are Android systems safe enough for medical devices? What kind of assessments are needed for Android software in medical devices?

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If you’re in the DC area near NIH please join me tomorrow as I lead a discussion on why MU is insufficient for EBM and CER. Here are the details:

When:  3:30 – 5:00 PM, Thursday, February 9, 2012

Where:  NIH Clinical Center (Building 10 North), Hatfield Room 2-3330

Abstract: Comparative Effectiveness Research (CER), which is being rechristened “Patient-Centered Outcomes Research” (PCOR), is all about using clinical outcomes research comparing different interventions and strategies to prevent, diagnose, treat and monitor health conditions. What’s known is that CER/PCOR is impossible without clinical data interoperability; what’s unclear is how to create simple, practical, solutions to data interoperability without creating or buying mountains of systems. Join me in this talk where I will review an open source architecture that can be implemented in almost any clinical setting to increase and improve the amount of clinical data available to feed CER and PCOR initiatives.

If you’d like directions to the NIH Clinical Center or the Hatfield Room please drop me at note at speaking@shahidshah.com.

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This is the next post in my series of Do’s and Don’ts Healthcare IT. As we all know, some of our most important citizens live in rural settings, small cities, the countryside, or remote areas. These areas have smaller populations and less direct access to vital healthcare resources. In the past 15 years or so we’ve made some great strides in remotely accessible healthcare; these offerings, called telemedical tools, provide important clinical care at a distance. Here are some do’s and don’ts of telemedicine:

  • Do use commonly available web meeting and online video tools bring expert caregivers anywhere. WebEx, GotoMeeting, Adobe Connect, Skype, and a variety of other “web meeting” tools used mostly in professional office settings and remote sales pitches are wonderful tools to connect caregivers in populated communities to their rural patients. A simple $30 to $50 per month account on the physician side with almost no direct cost for the patient is an excellent way to engage with patients. These kinds of web meetings can happen securely either at the patient’s home or patients can be brought into satellite offices with high-quality telepresence. Then, instead of waiting for days or weeks for a health professional to travel to an area or patients having to take off many hours or entire days traveling to experts in big cities, care can be given almost immediately with less inconvenience. Don’t assume that kinds of web meeting solutions are HIPAA compliant out of the box; however, do realize they can be made HIPAA compliant with appropriate protections.
  • Do use medical devices for remote monitoring of in-home care improve clinical observations. While web meetings are great for basic primary care, it’s not perfect for elder care, long-term care, and other types of clinical requirements. There is a new class of devices that can put near-hospital-quality patient monitoring devices into patient homes and “beam” that data to monitoring centers that can watch for important events across many patients in different geographical areas. Toss in a nurse or other caregiver that can visit once a week or once a month to calibrate the devices and you can see how much more convenience patients can have and have their physicians, wherever they may be, have immediate access to their actual vitals and clinical status.
  • Don’t assume that medical device connectivity will be fast or easy to do on your own — you’ll need something like Qualcomm’s 2net platform. 2net is a trustable, Class I FDA-listed, standalone gateway with an embedded cellular component that sends clinical data truly “in the cloud” without requiring local internet connectivity. Medical data can be sent from devices in the same way that e-books can be read on Kindle devices – using 3G cellular, from mobile phones, and software APIs.
  • Don’t always send patients to labs; instead, take labs to patients with mobile imaging and lab specimen collections that allow remote reading and web-based report distribution. It’s difficult for many rural communities to have their own full diagnosticians but mobile imaging centers and lab specimen “kiosks” can do the X-rays, take pictures, and perform collections and then send the data electronically to large populated centers where they can be “read” and analyzed; the reports can be distributed via secure e-mail or other web-based applications to doctors in the rural areas or physicians remotely available and connected through web meeting or other similar tools.
  • Do try and make behavioral health, mental health, and related care made more accessible. Veterans of our foreign wars are coming home with many problems that can be easily diagnosed with proper access and many of the veterans live in rural communities; while primary care and specialty care is difficult to get in smaller population regions, behavioral and mental health is even harder to access. Telemedical assistance through online chat, Skype-like video conversations, and secure online messaging can provide quick relief.
  • Don’t leave patients on their own and encourage them to join online communities. Online community building tools allow populated city citizens to meld with their rural counterparts. Patients helping other patients is a terrific approach to extending care; sometimes what a patient needs is not necessarily a health professional but a curated session with fellow patients going through the same problems. Online, electronic, community tools such as PatientsLikeMe.com can connect geographic communities and bring them closer together without increasing costs or requiring anything more than a simple mobile phone or computer.

What do’s and don’ts would you add to a telemedicine strategy? Drop me a comment below.

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Do’s and Don’ts of mobile/mHealth strategy for hospitals and HCPs

I recently wrote, in Do’s and Don’ts of hospital health IT, that you shouldn’t make long-term decisions on mobile app platforms like iOS and Android because the mobile world is still quite young and the war between Apple, Microsoft, and Google is nowhere near being resolved. A couple of readers, in the comments section (thanks [...]

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MU attestation vendor data available for analysis

In case you haven’t seen it, MU attestations data is now available on Data.gov and it includes analyzable vendor statistics. The data set merges information about the Centers for Medicare and Medicaid Services, Medicare and Medicaid EHR Incentive Programs attestations with the Office of the National Coordinator for Health IT, Certified Health IT Products List. [...]

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Do’s and Don’ts of hospital health IT

Last year I started a series of “Do’s and Dont’s” in hospital tech by focusing on wireless technologies. Folks asked a lot of questions about do’s and dont’s in other tech areas so here’s a list of more tips and tricks: Do start implementing cloud-based services. Don’t think, though, that just because you are implementing [...]

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Preparing for EHR implementation with the AHRQ Health IT Toolkit for Workflow Assessment

One of the most important activities you can undertake before you begin your EHR implementation journey is to standardize and simplify your processes to help prepare for automation. Unlike humans, which can handle diversity, computers hate variations. Before you begin your software selection process, get help from a practice consultant to reduce the number of [...]

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Healthcare Cloud definitions should be based on NIST’s definitions

As most of my regular readers know, I work as a technology strategy advisor for several different government agencies; in that role I get to spend quality time with folks from NIST (the National Institute of Standards and Technology), what I consider one of the government’s most prominent think tanks. They’re doing yeoman’s work trying [...]

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To make physicians more productive, focus on IT and tools for their supporting staff first

Productivity loss and workflow disruptions are commonplace as our industry gets on the Meaningful Use bandwagon and is starting to adopt EHR systems at a slightly more rapid pace than in previous years (things aren’t really as rosy as many think, but the pace is picking up). The reason we have productivity loss is that [...]

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